NIAW 2018

 

2018 NIAW theme

Its National Infertility Awareness Week!!

I’ve had this blog for four years, and I love that in April I can celebrate my “blogaversary”, and amplify my voice as a part of NIAW with advocates across the country.

The theme this year: Flip the Script

flip the script:
phrase of script
  1. NORTH AMERICAN informal
    reverse the usual or existing positions in a situation; do something unexpected or revolutionary.
    “Campbell flips the script on the old beauty-and-the-beast formula”

OR

To do the unexpected. To deviate from the norm

 

We’re going to ‘deviate from the norm’ this week (and every day) and change the conversion around infertility.

 

Most people have no idea what it means to suffer through infertility; the cost, the stress, the anguish, they physical and emotional toll it can have. And because of that, so many people hide, because lets be honest, it can be exhausting to explain all of this to other people.

But how will they learn if no one shares?

How can you encourage a sister when you keep your testimony to youreself?

 

There are lots of things happening on line and in locations across the country to spread awareness this week, check them out if you can! You can see a calendar of event here

 

Doing Big Things!

 

For all of the years I’ve lived in the DC area, I’ve never been to any official, (or unofficial for that matter) CBC events. Why? I don’t know. Probably the same reason I’ve never been to a HBCU homecoming: I just haven’t. Howard is right down the road, and I have several friends that are HBCU Alumni. There’s no excuse. Yes, I know my Black Card may be in question for never experiencing homecoming. I’m accepting all invites, since it is homecoming season if anyone wants to help me rectify that situation.

This year, I finally made it to CBC, and not just to party. The White Dress Project, a non-profit that advocates for uterine fibroid research and education, held two events and raised the profile of the organization and fibroid awareness.

 

Congressional Briefing (minus Me) Photo Credit: White Dress Project Facebook
Congressional Briefing (minus me)
Photo Credit: White Dress Project Facebook

On Wednesday, a few members of the WDP, along with several medical professionals, participated in a congressional briefing on Uterine Fibroid Education and Awareness hosted by Rep. David Scott of Georgia.

This was really the highlight and the most important part of being at CBC. I had on my schedule, and planned to be there, but unfortunately I had to cancel out at the last-minute. I was definitely in my office with the pouty face because I had to miss it.

This briefing was a major step in getting the cause out there and helping to earn support for officially designating July as Fibroid Awareness Month. Mr. Scott already introduced HR RES. 268 at the end of the last legislative term, “Supporting the designation of July 2015 as Uterine Fibroids Awareness Month”.

The next day, the DMV Leadership of the White Dress Project hosted an event. Part social, part informative. The ladies gathered health professionals, including a therapist, an OBGYN, and a surgeon, who happened to be my surgeon Dr. MacKoul, to answer questions, talk about the epidemic if uterine fibroids, treatment options, and how to deal with the emotional effects of living with fibroids.

 

White Dress Project DMV Social at CBC (I didn't realize we were not doing the silly faces anymore...) Photo Credit: White Dress Project Facebook
White Dress Project DMV Social at CBC
(I didn’t realize we were not doing the silly faces anymore…)

The really great thing about the event was not only meeting other women affected by fibroids, but hearing everyone’s stories. Being able to relate to taking hormones, or having to pee every five minutes, or the literal and figurative weight that is lifted once the fibroids are removed. To see how everyone bounced back, and in spite of possibly having fibroids re-appear, or questions on fertility post myomectomy, the  determination to move forward, and excitement of these ladies to educate others and advocate on uterine fibroids was amazing.

I was so excited to meet new women, and finally get to meet the White Dress Project founder, Tanika Gray, because……

 

I will be working with the White Dress Project as an ambassador, working to raise awareness and  get Fibroid Awareness Month recognized on a State level!

 

We Can Wear White
We Can Wear White

 

I’m so excited about this opportunity!  Please stay tuned for more updates, posts, and events on my journey with the White Dress Project.