Real Talk: I’m Not OK. Infertility and Depression

I’m excited to be back to blogging and getting back to normal, whatever that is.

If you follow me on Instagram or have followed this blog for a time, you know its been kinda quiet around here. Like, ghost town quiet. Not just for a week or a month. Maybe Mama was silent for a good eight months.

Eight. Whole. Months.

In an online space, eight months of silence is a long time when trying to send a message and build a following. I missed opportunities to share my thoughts and experiences, make connections with people, and grow my presence.

So, why?

DEPRESSION

I’m flipping the script to add yet another layer to this story of mine: My fight with depression. This is part of family building journey as much as Lupron, ultrasounds, and HSGs

credit to owner

Last year, in March and April (part of February too because of priming), we did our first IVF cycle. For my circumstances (low egg count, one ovary, high FHS/low AMH, ), I did pretty well in terms of output.

All in all, from one ovary, they got 8 follicles, 4 eggs, and they were able to create two embryos. I felt good about that, because I had already done better than expected.

Every day, my nurse would call to give me an embryo update. The embryos were dividing, and growing on schedule. Until they weren’t. On Day 4 the report was they were growing, but not as quickly, which was not necessarily a bad thing. The next morning’s call, they had stopped growing completely.

I didn’t really know what to feel. I was sad, but more so I was caught off guard. I knew that anything could happen at anytime, but things were going so well, I “forgot” to be worried that they wouldn’t make it.

My doctor called later in the evening to go over everything in more detail. I sat in my car, in the dark, with my teal “baby journal”, where I keep all my notes, listening and writing down all the important points and take-aways from our conversation. All the while, fighting back tears, trying to seem cool, strong, and unbothered.

This whole time, no one saw me break, and I was proud of that. But on this call, I could barely keep it in. I told myself to suck it up, and I focused on the clinical and scientific aspect of what was happening, and not on my disappointment, fear, and anger.

After a few minutes in the car by myself to process, I went in the house. When I went in, I told my husband the news. I broke down, but only a little. I didn’t want him to see me upset either. I knew my being upset would make him upset.

So I kept it together.

And I kept on “keeping it together”. Acknowledging that we failed but not really dealing with it. I kept on pushing, going about my every day tasks, only crying now and then when no one was around.

For those that knew I was going through this journey, I wanted to seem brave and strong. I wanted them to see how determined you have to be to even go through the infertility thing. I wanted to be a billboard for all of the women who have done this, once, 5, 10, 20 times. I didn’t want people to have pity on me.

For those who had no idea, I wanted it to remain that way. I never wanted to give off any hint that I had chaos going on behind me.

But being “strong” and unaffected was a front.

Those feelings of guilt, anger, doubt, and disappointment, were slowly creeping up on me. My veneer of cool was starting to crack. I could feel it.

Children under 5 gave me anxiety. Literally. I could not be around small children without getting upset.

I felt like I was just floating through life. It felt like I was existing in life as one of those floating perspective shots Spike Lee’s famous for.

I found a lot of things to distract me from my thoughts. I went out for dinner, happy hour, or day parties almost anytime someone asked. I started crafting, which was great to calm my anxiety, but it was mainly a distraction. When I felt anxious or sad, or something I couldn’t quite pin down: I ate.

I had random waves of sadness and cried.

I bought a lot of clothes, shoes, and things I didn’t really need.

Some days, I didn’t want to see or talk to any humans. I barely wanted to get up out of bed.

One day, I looked around and I realized the literal state of mess I was living in. Our bedroom (well, my side mostly) was a mess. Dining room: clutter. I felt embarrassed. How could I let it get like this? I spent the whole weekend cleaning the apartment. I realized this was an outward representation of the state of my inner self. This was not me. But I kept on pushing. I’m fine. I’m good. I’m OK.

More and more, my conversations with my husband centered around babies, or lack of babies, or our(my) infertility. The majority of those conversations ended with me crying.

Finally, one day, my husband looked at me very lovingly and said ‘Maybe you should see somebody’

I paused.

I wasn’t offended. He didn’t say it to be malicious. He could see me struggling.

I started thinking about those past 6 months. I knew I wasn’t myself. I was probably depressed.

“Maybe you’re right.” I had a therapist I had seen about a year before for a few sessions. I decided I’d reach out to her.
I procrastinated for another 3 months.

I didn’t want to admit I was depressed. That my cycle failing upset me. I never thought the death of two, four and a half day old embryos would make me feel so much loss. Then I got upset with myself for being sad and depressed: “Women have lost actual babies. Miscarriages. Still births. Why are you so upset?!”

But then I realized: I was not just grieving the death of embryos, but of a dream. A tiny piece of hope stopped growing in that lab that day. It was OK to not be OK. It was OK to grieve. It was OK to admit I was depressed and needed help. To be 100 transparent, I have dealt with anxiety and depression in the past, but never at this level.

In January 2018, I started seeing a therapist, which was difficult at first. Three months later, therapy is poppin’ and I’m in a much better space, and feeling more like myself. Which is a wonderful thing.

I’m sharing this because just like there are women suffering infertility in silence, there are women pushing through depression in silence.

Don’t.

Its OK to seek help. You can pray and go to therapy. God won’t be mad at you.
You’re not less of a woman.

As Black women, we feel we have to always be strong, always be stoic and carry the world on our shoulders. Be long suffering and always wear that Superwoman cape. Who told us that? Being sad or depressed does not make you weak. It makes you human. With all that’s going on in the world, on top of what you may be feeling in regards to your fertility journey and other family or personal stresses and feeling like you may be at a breaking point.

  • Practice Self-Care
  • Know when you need to take a break from treatments. Time is not always on our side depending on your fertility journey, but don’t let your doctor push you into a new cycle if you’re not ready.
  • Allow yourself to grieve any failed cycle or loss
  • Connect with someone not your spouse/partner: a friend, another TTC sister, a support group.
  • See a therapist if you feel it is necessary.

7.6% of all Americans report being depressed at some point. About 4% of women and minorities all report having experienced depressive mood, as compared to about 3% of white men.

As always, links and resources below.

Especially check out Therapy for Black Girls!

What is Depression?

Infertility and Depression

Black Women and Depression

Infertility Warrior Badge 2018 final

I Skipped My First Baby Shower…And I Don’t Feel Guilty

In the infertility world, we talk a lot about doing what’s best for you to make it through this crazy journey. This was the first time I truly did what was best for me no matter how anyone else felt about it.

I skipped a friend’s baby shower. I never thought I would be one of those. But I was, and I don’t feel bad about it.

March was our first IVF. The ultimate result was a fail. Our embryos didn’t make it to blastocyst (stopped growing on day five), and I was caught off guard and a little depressed. OK, a lot depressed, but that’s a story for another post.

Up until this point, I would say I was pretty positive

Insert our friends and their pregnancy.

This is a couple we have done a lot of things with: date nights, birthday parties, game nights, Cookouts, Weddings, Critiquing other friends’ girlfriends/boyfriends. We even got engaged within a few weeks of each other and married in the same year.

We did a lot together…except get pregnant. Of course they have no idea about our struggle. When I first heard the news about the pregnancy, I had that mixed feeling many of us know all too well of happiness and despair. Excitement and panic. Joy and pain. (no sunshine or rain)

Once we got the announcement around the holidays, I started stressing about the shower. I knew it was coming because we saw one of the grandmas-to-be at another event, and she told me the date they had in mind for the shower.

I went back and forth in my mind about going, months before it even happened. Eventually, the invite came, and it got real. It was a co-ed shower, so both hubby and I were invited. He was an emphatic “Yes”. I was still undecided. I felt bad, but I had to pop his bubble a bit and ask him if he was prepared for questions about us having a baby. We had just found out about or failed IVF cycle a few weeks before and were still processing. I know men handle this differently, but they do have feelings. I didn’t want him to be caught off guard when someone asks, and he was triggered. I had to remind him it’s a little different now, and that he may feel some type of way when someone says, “You two are next!” I’ve become an expert. He’s still a rookie in these types of interactions.

He said he’d be fine. The real question was if I was going to go.

“Put me down as ‘yes’ for now, but I’m not sure.”

The weeks passed, and finally we’re at the week of the shower. I was still on the fence. We needed a gift, so of course I volunteered to stop at Target after work to pick up some items off the registry.

I always like to give books as part of a baby’s gift. I like books, and I want to create little readers. Plus, reading is great bonding time with parents and kids. I went into the book section, looking for some of my favorites; The Very Hungry Caterpillar, Green Eggs and Ham, but I’m always looking for new books.

That’s when I found Wish. I vaguely remembered someone on Instagram mentioning the book. I opened it and started to read…and started to cry in the Target. In the children’s book aisle.

The plot:

As an elephant couple embark on a life together, thoughts of children are far away-at first. But as the desire for a child grows, so do unexpected challenges. And it’s only after thwarted plans and bitter disappointment that their deepest wish miraculously comes true.

So, there I am, reading this sweet book, and tears running down my face. That decided it: I. Wasn’t. Ready. Cute onesies, bibs and blankets are one thing, but an amazing children’s book about how Mommy and Daddy had to suffer and fight to have you: Waterworks.

I knew If I couldn’t read that book and keep it together in a Target, the chances of me making it through a shower were slim.

I went home, wrapped the gifts, and told my husband I wasn’t going.

“What do you want me to say?”

I didn’t have to think long because I did have an out. I had a meeting, then a little fellowship afterwards. They didn’t know that I could leave or skip it all together if I wanted. Perfect! “I have chapter meeting, and it’s an important one. I won’t be done in time to ride down with you.” (They live about a two hour away since our move)

Hubby went, and by all reports and pictures posted to Facebook, the shower was great.

As for me, I did what I wanted that day, and I felt not one drop of guilt. I’d rather have people slightly disappointed that I wasn’t there, than for me to be uncomfortable, on edge, wrestling my emotions, and recycling one of my canned responses to when we’ll have kids or why I ‘m not pregnant.

At some point, you have to choose you. Sometimes that looks like selfishness, being disengaged, or a party pooper to others.

But if they only knew the real story…….

If you’re interested in purchasing Wish by Matthew Cordell, for you or a friend, you can do so here.

8 Things You Need to Know about your IVF Protocol that No One Told You

Hi Maybes!

I’ve been a little quiet because…..I just finished my first protocol for egg retrieval. We’re going to freeze and transfer in a few months once we get this thin lining resolved.

Updates on my cycle soon to come.

Having just finished the whole processes of stimulation and retrieval, I feel like there are things no one told me,practical things, that I never knew, so I’m going to share a few things I think might be useful to know before your start.

Step. Your. Sock. Game. UP
Seriously. You will be in the stirrups more in these 10-12 days then you probably have been in all of your adult life. Give yourself a boost of confidence. Give your doctor and staff something fun to look at. Keep them guessing. Wear fun socks. Trust me on this.

Drink A Lot of Water

Why? Because you will have blood drawn every time you go in. Every. Time. You’ll feel like a pin cushion. If you’re like me (and hopefully you’re not), and have small and hard to find veins, drinking lots of water will help you a lot. Even if you’re a standard blood draw, being well hydrated makes your veins plumper and easier to find. It will make this part of the appointment go a little bit smoother.

My arm on day one of monitoring…
One of my arms on the last day of monitoring.

Give yourself an extra 5 minutes your first dose day

When taking your injections , its important that you dose at the same time every day, or as close as possible. On your first day, or your first day adding a new medication, give yourself an extra five minutes, especially if its something like Menopur, that has to be mixed by you.

It can be a little cumbersome sorting out all of your needles and viles, mixing, and measuring. Add in at least a one minute pep talk to yourself the very first day to hype yourself up to stab yourself with a needle.

On that note….

PM dosing

The needles for the injections are not that bad

They really are thin, tiny needles. Unless you have a real fear of needles, you’ll be a pro at jabbing yourself after about three doses. Except for the trigger shot. THAT needle is longer, and a little wider, but it goes in your butt, not your tummy, and is intramuscular, going into muscle, so it needs a little more length and needs to be a little wider. Its all relative, because none of these needles in more than a few millimeters across.

For this process, a little tummy fat is a good thing!

Many of the stimulation meds are given subcutaneously, meaning under the skin. Usually you have to pinch an area of skin/fat on your abdomen. If you have a lil extra there, it will be a good for these purposes for this.

You can’t be Shy (because you may have to do your shots in a public space)

If you follow me on Instagram, you saw me post about my first public dosing. Long story short: I had the bathroom all to myself, them someone came in. With her nosey self, she lingered around, taking forever to wash her hands and re-applying her lip stick oh so meticulously, to see what I would be doing since by that point I had my supplies laid out. After a while I just said “F it! She gon’ learn today ” and proceeded with my shots.

I had 2 more times I had to dose in public restrooms. Fortunately, there was room and shelf (or shelf like) space in the stall where I was able to have more privacy. Except for the lady at the road stop that was telling me her whole life story from the other stall….

Bloat. All of the bloating. And Gas

I’m telling you because I love you. After a few days of stimulation meds, you will be a little bloated, OK, a lot bloated. And gassy. You’ll feel the pressure and heaviness of those enlarged ovaries (which is great!), but it makes you feel very bloated and full. Your injection areas will be a little swollen as well. Its uncomfortable, but manageable.

Your mind will be a little foggy. You will have emotions and moods

This is commonly said, but I wanted to clarify. For me, it wasn’t the violent, quick, up and down mood swings, it was little things. I cried about something every day the first five days. Things that would usually just annoy me, made me really pissed off. Things that wouldn’t bother me at all made me upset. It’s like PMS turned up a little. There were times in the middle of an emotional moment, I said to myself “why am I crying?” or “What is wrong with me?” I was very on edge.

The fogginess, I imagine is similar to what pregnant women call “pregnancy brain”. I just didn’t feel like myself. I forgot a lot. I felt like I was operating out of body a lot of the time. It was just a general lethargy and sluggishness I fought through pretty much every day once things really go going. Some of it may not have been the meds, but also the overwhelmingness and newness of starting my first IVF cycle, and all that it meant. Just know that you will be in a strange head space, rather its med induced or not.

*Bonus Don’t call new people you meet by the name brand of one of your meds

This seriously happened to me, but I didn’t say it to his face. A group of my friends and I had just met some new people, and later I was trying to remember one guy’s name. It had a “V” and an “L” in it somewhere. I said this with all seriousness:

Me: What was his name? Vivelle? Oh wait, that’s my estrogen patch.

July: Cookouts, Fireworks, and Awareness

July for Blog

One thing I have absolutely NO problem doing on my blog or social media is shouting out, partnering, or spreading awareness about/with other group or individuals that are about women’s health in general, or uterine fibroids, infertility, or Black women specifically.

I discovered last year that The White Dress Project started an initiative to recognize July as Fibroid Awareness Month. I found out pretty much at the end of the month, but now that I know, I’m going to kick it off right.

July is Fibroid Awareness Month!!

This is an “unofficial” month of recognition and education on uterine fibroids. Some states have adopted, but there are about 45 to go.
Want to make it a nation wide thing? Sign this petition to send to Washington to make it happen ( I mean….they have a lot going on, but maybe something simple like this can make it through all the BS.)

Use this month to tell your story, make sure you’ve had your yearly visit to your gyn (*ehem* self), change your diet, schedule that myomectomy you’ve been putting off (trust me,you’ll feel 1000 times better!)

This month I’m going to publish Part Two of the Mystery of Fibroids focusing on beauty products as a possible cause or agitator of fibroids, and I’ll be sharing lots of articles and information on fibroids.

 

Check out the Fibroid Facts page for more information on uterine fibriods

 

 

 

But Why? The Mystery of Fibroids Part 1: Estrogen Dominance

 

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By now we all know that up to 30% of all women will be diagnosed with uterine fibroids by the time they’re 35 , and up to 80% of all women will be diagnosed with uterine fibroids by the time they’re 50. African American women suffer more severe symptoms, they grow more quickly, and happen at a younger age.

The real question is ‘Why?’

Is it genetics? Food? Environmental factors? Cosmetics? Estrogen dominance? Some combination of these?

When I was first diagnosed with fibroids, I wondered “how?” How were there so many? How did they grow so large? How did I not know? What caused them?

Now, three years later, there is no sign of them (thankfully) at this point. What’s changed? I haven’t had a relaxer since 2005. I haven’t been on birth control since about that same time. But, my diet  and exercise routine now is actually worse than it was prior to 2013.

I took some time to dig into some factors and theories regarding uterine fibroids. There’s a lot more to dig through than I thought there would be, so I am breaking this into a series, with each possible cause getting its own post.
First up: Estrogen Dominance

 

Estrogen dominance: A condition where a woman can have deficient, normal or excessive estrogen, but has little or no progesterone to balance its effects in the body.

Estrogen dominance is more of an imbalance, in the sense that usually its not that someone’s body is making an abundance of estrogen (though that could be the case), just that the balance of estrogen and progesterone in a woman’s body is off.

Our Hormones in Blance (graphic courtesy of fibroidelimination.com/)
Our Hormones in Balance
(graphic courtesy of http://www.fibroidelimination.com/)

Before I go deeper, let’s first review some basics of a woman’s biology. You’ll need the review to get a full understanding of Estrogen Dominance.

As we all know, women have menstrual cycles. A cycle starts the first day of your period, to the first day of the next period. The average menstrual cycle is 28 days long, but can vary form woman to woman.

The two main sex hormones in women are estrogen and progesterone. They work together to maintain balance in our body at all times. 

Estrogen regulates menstrual cycles, promotes cell division, and in puberty, the development of breasts, growing pubic hair, etc.

Progesterone maintains the health of a fetus. It protects us against the  effects of estrogen by stopping further ovulation the second half of the menstrual cycle if a woman is pregnant.

Estrogen is highest in the first half of your cycle. It reaches its highest levels during ovulation, then drops and progesterone rises. Progesterone is released during ovulation. Some testosterone is released around the time of ovulation as well. If you do not get pregnant, you have a period and everything starts all over.

 

Now that the review is out of the way, let’s get little more into ED.

Because our bodies need estrogen and progesterone to maintain our body’s reproductive cycle, it is important that they stay in balance.  They counter each other. If/when that balance is upset, even on the smallest level, there can be problems.

How do you know you have a hormonal imbalance of any kind? Some symptoms of hormonal imbalances may include:

  • Irregular Periods
  • Sleep Problems
  • Acne
  • Foggy Memory
  • Digestive issues
  • Fatigue
  • Rapid Weight Gain/Loss
  • Vaginal Dryness
  • Headaches
  • Breast Tissue Changes
  • Loss of Libido
  • Infertility

 

Some symptoms or conditions thought to be the result of Estrogen Dominance specifically may include:

  • Fibrocystic breasts
  • Endometrial (uterine) cancer
  • Polycystic ovaries
  • Uterine Fibroids

 

What causes the imbalance?

Several possible things:  Low progesterone levels/production,  chronic stress, synthetic estrogen (birth control pills, HRT [Hormone Replacement Therapy]), as well as environmental hormones and hormones found in food(diet)

 

Some hormone levels naturally drop with age, so as we get older, hormone imbalance of some sort is inevitable. So if our progesterone levels decrease, and our estrogen does not decrease at a comparable rate: Estrogen Dominance.
Of course, taking any hormonal birth control or HRT will alter the body’s balance. Birth control is made to fool our bodies prevent a true period. These two factors seem like obvious reasons for the body to be out of balance.

But what about food and environment?

In foods and the environment, we are exposed to Xenoestrogens.  Xenoestrogens are are a type of xenohormone that imitates estrogen. They can be either synthetic or natural chemical compounds. (Wikipedia)

With so many processed foods, genetically modified foods, pesticides, hormone injected meats, and foods with soy (which is a known natural xenoestrogen) its no wonder that our hormone levels are affected by what we consume. There is a big movement for less additives, and preservatives in foods: clean eating. It makes sense. With so many additional chemicals on and in food, the long term affects can’t be good for us. Does ingesting so many additional hormones from meats and chemicals in foods not initially meant for human consumption hurt us? I’m sure is doesn’t help. Do they contribute to an increase or decrease of hormones? Its very likely.

On the same road as food is environmental factors. Many of these, we have very little to no control over. Many environmental chemicals are also xenoestrogens. Many of which are found in daily beauty products (Post number two in the series). The main culprit is plastics. Remember the whole BPA in plastic bottles thing? The compound is found in everything from drink can coatings, to DVDs, to water bottles. It can disrupt or mimic natural hormones.

 

So what can you do?

You need testing to determine your hormone levels, which can only be done by your doctor. They will be able to determine if your levels are within the range of “normal”.

Outside of medical intervention, things can be done on your own to help balance your levels.

Changing the diet is the biggest thing, and probably the hardest for many. Let’s be real: fruits and grilled veggies are very tasty, but sometimes, a big ol’ cheeseburger and fries just tastes and feels sooo good.

Modifying diets to eliminate or greatly reduce soy, meats such as beef, and processed foods decreases exposure to additional estrogens or estrogen-like compounds. Of course, increasing exercise and being more active will also help.

There are various diet programs out there geared towards fibroid elimination. I don’t make it a habit of publicly endorsing programs/people/things that I haven’t personally tried on this blog. I would say if you’re going to try one of these programs, do your research.

Beware of your plastics use. Try not to warm up items in the microwave in plastic containers. The warmed plastic molecules can possibly seep into and contaminate your food. This is in very, small amounts, but over time, this could increase estrogen in your body. Don’t drink out of bottled water bottles that have been sitting in a hot car (same principal as microwaving in plastic), and try to buy water bottles (and bottles for babies for that matter) that are labeled BPA Free.

 

There is really a lot more to say on Estrogen Dominance, its part of the reason this post look literally months for me to get up. I kept researching and trying to figure out what to write and what to leave out. At the same time, I kept discovering more stuff!

I hope this was a good first step to learning more. I definitely recommend taking the time to do more research on your own. You can start here:

butternutrition.com/estrogen-dominance-hormonal-imbalance/

www.ecopedia.com/health/estrogen-dominance-how-food-affects-men-and-women/

www.drlam.com/blog/estrogen-dominance-part-1/1704/

 

Next post in the series: Beauty Products and Fibroids

I’m talking relaxers, lotions, nail polish, makeup, hair glue…..errthang.